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Anophthalmia
Interesting read
Thu, 04/23/2009 - 11:32 | 
administrator
Thought this might be an interesting read. Definately shows how the support of your parents either allow you to proceed well or be held back especially when you have a disability of one sort or another.
Tags: Where do i start?????
Tue, 04/01/2008 - 18:58 | administrator
As the title suggests.. WHERE DO I START!!!!
Today was Huge
We had our usual weekly (and unfortunately last) visit to Narbethong. As of next term, we will be visiting the Gold Coast based group on Thursdays instead of Narbethong on Tuesdays. Caitlyn had a very big day there. Must say a quick thank you and Goodbye to all the staff of Narbethong, From time to time we will try to visit and say Hi.
I also have had a chat with Jim from Narbethong. He is one of the Teaching staff there and along with Kerry, they have asked me to assist as a consultant on the new look Narbethong website. Once it is completed i will post the Link here to allow everyone to look at it.
Next thing that happened today was nothing short of amazing. We met a fantastic boy (14 years old) who has Anophthalmia. He introduced himself to Caitlyn and there is no real way to express the feeling that I had as a parent to see my daughter able to interact with someone who has the same condition. You could see the look on both their faces. It looked to me like Caitlyn knew he had a similar condition. Hopefully we will be able to catch up again with this inspirational young man (as the term boy really doesn't suit his maturity) and the rest of his family.
We got to meet the Specialists today. Our doctor is one of the leading specialists in the field on child vision impairment. His staff are nothing short of amazing. Their care and compassion not only to Caitlyn but towards us cannot be expressed easily. You could sense that they where 110% ready to help us in any way possible. I have asked them if possible and able to, could they please supply any additional information for this website.
Doctor advised us that they will need to do a full inspection of Caitlyns Eye socket and the "Globe" and muscles that are there. This will be completed under sedation so as to not stress Caitlyn out too much. They will also be taking a mould of the eye socket in preperation for her first prosthetic.
Well needless to say it was a long day. We left home at 7:30am and didn't get home till nearly 4:40pm. Caitlyn, Mum and Dad are totally exhausted so will call it a day i think.
The search is on.
Sun, 09/30/2007 - 11:39 | administrator
We have decided to start the search for others who are affected by Anophthalmia or Microphthalmia.
We are asking for everyone to please send an email asking for the search to begin.
Caitlyns condition is very rare and we are hoping to meet up with others who are affected to see what can be done to assist Caitlyn and others with their day to day live.
Please - we do not in any way endorse Spamming but if you can send information to your contact list pointing them to www.caitlyns-story.com
We are attempting to purchase a Braille Writer to hook into our computer. This is approx $4000 total purchase. Any assistance will be greatly accepted.
