Isn't it amazing how the internet has changed the world. Yesterday after doing some work for a friend/employer of mine, Caitlyn's condition has now been noted by a well known US based Blog writer. Real Live Preacher who is a client/friend of my friend. Many thanks go out to all of those from RLP who have sent their prayers. Our little girl Caitlyn is going well. I would appreciate any one in the US who knows of someone else with this condition please post your comments here. I would like to get to speak to others with this very rare condition.