Well the day after the Hospital visit and we look back over what happened yesterday. It was a very long day for us all. Caitlyn was an absolute angel. She had fallen asleep sunday night at about 11pm. We couldn't give her anything to eat or drink after 2am. By 7am she finally woke up after the trip up to Brisbane. She had a bit of a grump and grizzle about 8ish but soon forgot that she hadn't eaten yet. 8:30ish they took her down for the surgery. She was back on the ward by about 10:30ish. By THEN she was hungry.

We just received the notification for Caitlyns first moulding for conformers. To do this she will be put under a full anaethstetic (not sure how to spell that one!!).

It is Monday morning (8th September) at 7am.

As the title suggests.. WHERE DO I START!!!!

Today was Huge

We had our usual weekly (and unfortunately last) visit to Narbethong. As of next term, we will be visiting the Gold Coast based group on Thursdays instead of Narbethong on Tuesdays. Caitlyn had a very big day there. Must say a quick thank you and Goodbye to all the staff of Narbethong, From time to time we will try to visit and say Hi.

I also have had a chat with Jim from Narbethong. He is one of the Teaching staff there and along with Kerry, they have asked me to assist as a consultant on the new look Narbethong website. Once it is completed i will post the Link here to allow everyone to look at it.

Next thing that happened today was nothing short of amazing. We met a fantastic boy (14 years old) who has Anophthalmia. He introduced himself to Caitlyn and there is no real way to express the feeling that I had as a parent to see my daughter able to interact with someone who has the same condition. You could see the look on both their faces. It looked to me like Caitlyn knew he had a similar condition. Hopefully we will be able to catch up again with this inspirational young man (as the term boy really doesn't suit his maturity) and the rest of his family.

We got to meet the Specialists today. Our doctor is one of the leading specialists in the field on child vision impairment. His staff are nothing short of amazing. Their care and compassion not only to Caitlyn but towards us cannot be expressed easily. You could sense that they where 110% ready to help us in any way possible. I have asked them if possible and able to, could they please supply any additional information for this website.

Doctor advised us that they will need to do a full inspection of Caitlyns Eye socket and the "Globe" and muscles that are there. This will be completed under sedation so as to not stress Caitlyn out too much. They will also be taking a mould of the eye socket in preperation for her first prosthetic.

Well needless to say it was a long day. We left home at 7:30am and didn't get home till nearly 4:40pm. Caitlyn, Mum and Dad are totally exhausted so will call it a day i think.

Well tommorow is the big day. After our usual visit to Narbethong we will be going to see the specialists for Caitlyn. The visit is at the Royal Childrens Hospital in Brisbane.

Hopefully we will get more answers from the doctors about what we can do for Caitlyn and possibly what caused her condition.

Once we have been we will post more information.